Down To The River To Pray

This song just caught my eye this evening...I do love this folky type music...I will update more on B soon...

Happy Birthday Ninja warrior boy #12

Today is Ninja/Secret Agent boy's ( 3rd son ) birthday. He was born 12 years ago. The only child of my brood to be born in the afternoon light hours. He was not in a hurry to come out either by date or by labor. This signified the beginning of his unique personality.
He requested a boston cream cake/pie. I obliged him. I think it turned out quite good. I pretty much only make home made frosting and whip cream now. I really love the taste and it is so easy. I figure that is healthier than store bought even though it's still sugery goodness.
Here is the recipe I followed for my first actual chocolate butter cream frosting! It is so good and very rich! Wish I could post a photo. I will get this straightened out soon. We are taking the boy skating with his sister and a couple friends and then home to play. It will be simple this year.

more blood and platelets

We will go in tomorrow for red cells and platelets. They are still trying to figure out the plan for sure so I have no idea if we are being admitted or not at this point. B felt much better Monday after a rough weekend coming off the prednisone and all his counts dropping etc...
We are trying to build him up so he can handle all the chemo. His kidney test is all better now that the prednisone is out. So glad to see that.
Just sitting back waiting on the Lord as He directs everything. There are so many weird feelings and yet so much peace at the same time.
Life goes on as usual though around me. Cars go by, people stay busy, babies are born, kids still need their mamas and papas. Meanwhile, there is this annoying cell that keeps invading. But God is bigger than that as we keep believing there is complete healing.

"We just have to get this last thing mom."

Love that boy....

god be in my head

I discovered a new artist that I just love!!! I adore spending time listening and worshiping the Lord in song. It clears my mind, fills me up with His word and truths, lifts my spirits, pleases Him, calms my nerves, puts things in perspective, heals me, works in my life.....I could go on and on....I urge you to fill up on worshiping Him through uplifting music..after all He is the creator of music....

beautiful sunny sunday

The sun is shining today, with a lovely breeze. I alternate between much needed deep cleaning inside and sitting and reading outside on my modest porch and of coarse, cooking food for 'bottomless pit boy'. :) He is off with dad, at the moment, ordering our new dishwasher which we are in desperate need of. It has been far too long of the old one not quite working right.
The list of things is long. My thoughts wander easily. Priorities are just...different. I am getting ready for the school year. Planning what to do with B until the transplant, during the transplant and after the transplant. Planning what to do with the two littles. Torn between what I CAN do, what I LONGto do, what I WISH I could do and what I SHOULD do...in other words...what the Lord LEADS me to do.
The garden needs weeding. I may get out there. The ratio of weeds to veggies is detestable. I will not give up on my 2 spinach plants, 3 pole beans, one watermelon seeding, many reseeded tomato plants and the turnips and arugula I threw in to get rid of the seeds and feed the hamsters a treat!!
Oh, I think I have one broccoli that survived. woot woot.
B's head is large but he is almost done and is in good spirits. I am so proud of him. He is some amazing kid. He told my mom the other day that he may wish he had lost a limb than have cancer. Ugh.
Be healed Braveheart, in Jesus name!!

raising dragons

Braveheart is getting quite swollen in his face and bloated from the meds. He only has less than a week to take that, we are glad to report. Tuesday I took the 2 littles and their friends to the discount pool night and let them swim. B got his much awaited date night with dad. They went pee wee golfing. B reported later that they had a really good time. Last night we watched HOW TO TRAIN YOU DRAGON together. Me and the man have never seen it yet. It was so good!
This morning B was up reading a great book. RAISING DRAGONS BY BRYAN DAVIS. He is a Christian Fiction writer. Dylan enjoyed that series when he was young and now Damsel picked it up at the library and can't put it down easily. So, I was pleasantly surprised that B was farther along than she. We highly recommend that series. This series is listed as 9-12 years. He has other series that are YA.

We go for more chemo tomorrow. Prayers are welcome. The days are surreal here, waiting and enjoying each other. Planning for what is coming. God has given great peace. B is ready this time around. I still wish that this wasn't what must be done. Either way I am believing that God will do a great healing testimony through this. I am at peace. We just wait, believe and stand in faith and see God work. It is odd how calm and normal things are around here. We have kept all the summer activities to a minimum as well. It's almost like nothing is happening in a weird kind of way.

Well, hug your kidlets and I will be back to muse about my days getting ready for transplant...

braveheart and father's day

I can't believe how many things Braveheart is planning. He had a full weekend between naps of museums, walks by the river, airshow and shopping to name the major events this weekend. He really doesn't have an immune system though, so he has a mask to take along and we have some tricks for knowing how far he can go and what he can do. He was denied a few things. It was a good Father's Day!