Magnanimously homeschooling, worshiping, creating.......
Saturday, January 31, 2009
Friday, January 30, 2009
Thursday, January 29, 2009
It is soooo good to see this smiling face back in action. Just look at that plate, not to mention, I love that smile!
Monday, January 26, 2009
I am officially done enough with this school room/office/ library. There are some tweaks that may need tweaked later and I would love to paint in here some day as well, but for now it is quite functional. I also will need to get some maps on the wall.
Thursday, January 22, 2009
The weather heated up for a moment and Braveheart is feeling better and look; this is his first time out in the snow this year!
We had a great start on 'day 0' of our new phase of therapy and we are very thankful for how far we've come on our journey.
Here's an excerpt from my carepage musings:
As I think about all we have been through, the ups, the downs, the in betweens, it just at this very moment today, having gotten his results and knowing we are going to forge ahead tomorrow, occurred to me what a milestone we have crossed. It causes me to reflect back to the day we almost lost our dear son on the way to the hospital! I remember he started having trouble swallowing as we were driving him there and he couldn't breathe well. How God made it possible that we got there that very day we needed to be there. The doctor even said that. The feeling of complete loss of control as we were told he had a very rare disease with a very low chance for a cure. He was lying on the table and I remember realizing he was dying. How does one explain the feeling in the pit of your stomach when you can’t go backwards and have a ‘do-over’? Some of you DO know. One must be brave and yet, you just want to go outside and scream. Well, needless to say, we were praising God when a few hours later they established that it was actually the t-cell Lymphoblastic Lymphoma. Even so, he was still very ill and had to go to PICU to monitor his airway. (He had partially collapsed lungs) They said it had a high cure rate, but what does that mean to a parent who knows the stage/ advanced amount of disease and reads the numbers and that t-cell is harder to cure etc.? Then, you spend the first 5 or more weeks not knowing if your child is even responding to the chemo at all; if he is even going to live! Watching him so ill and getting that wrenching feeling in your gut. We are thankful for the peace God gave us then, the joy and hope we had when we were finally told that he had responded well with 90% of the cancer gone!! It was still not a full relief until after the second phase was over and a long wait to tell us that remission was finally a reality. That was 4 months later! Let me tell you, these guys give you no false hope. No encouraging words that it is all going to be OK. We got through it all by the grace of God, your prayers, love and friendship. It has been hard sometimes, I won’t lie to you. We have had moments of weakness. Also, we know that feeling in our gut isn’t going away forever….yet, our battle isn’t over and only God knows the outcome for sure, but we are so hopeful and thankful to be looking back on this huge mountain behind us.My mind is baffled when I think of how only God knows if there is a bad cell left in his little body. He knows if that last hospital stay, where he was brought to ‘the door’ and back was needed to make sure every little hidden cell was ‘caught’ and killed. I sometimes wonder; at what moment is the last one gone? Doesn’t that blow your mind? Obviously, we know that it is likely still there and he would relapse without another year and a half of MAINTENANCE therapy. The chemo is working at keeping his body ‘in proper condition’ as defined above, giving a continual dose to hopefully get any new bad cells that try to surface.To clarify for any of you who are new or forgot, Bryce is in remission, which means that none of the cells are visible on the scan. He is not yet CURED and will not be considered so until 5 years out of treatment.
Suddenly, here we are today and it all seems so fresh and new, knowing we are starting phase 5. Although we have been doing fine in our hermit like state while he recovered (he was unable to go very far due to low counts and increased risk for infection) now it is exciting to think of all we/ he can do again. He is anxious to get back to church and hang out more with his friends. It’s very exciting. Yes, looking back we are in awe of how we’ve been given strength through Christ in it all. He isn’t fake, He is real, a REAL HELP in time of need, no matter what the outcome of this trial in our lives. Now we begin this new part of our journey and we are looking forward to what's ahead with joyful anticipation. Thank you for letting me share a piece of our journey that I haven’t really shared with everyone. Thank you for continuing this journey with us.
Wednesday, January 21, 2009
Sunday, January 18, 2009
Saturday, January 17, 2009
Friday, January 16, 2009
Thursday, January 15, 2009
Wednesday, January 14, 2009
Tuesday, January 13, 2009
Isn't that adorable? We couldn't resist after we made that discovery. Dad helped by cutting some carpet squares for the palace...I mean 'home made doll house'. :)
Saturday, January 10, 2009
(Pro 4:21) Let them not depart from thine eyes; Keep them in the midst of thy heart.
Now if you have boys, don't be afraid, get a shelf or a box and create a boys room or a hunting ground or something cool like that. You can accomplish nearly the same thing or whatever dreams he has.
One of the fun challenges of this project will be in being thrifty and creative in developing it into it's doll house grandness. As you can see we had to do some prep/painting type work but it wasn't that hard, still fun.
Damsel girl was very diligent with her prepping of the home for paint.
The excitement is building!
Here's two dolls that we discovered we already had that she bought last year. They are very happy to be moving in and start decorating.
Here is the finished product. The kitchen has been painted blue, one room has been wall papered (got that at gw real cheap) and we already had a very cute chair for one of the girls to sit on.
We'll let you know more next time on the doll house adventures!
Friday, January 9, 2009
Thursday, January 8, 2009
Tuesday, January 6, 2009
Tea is pretty!
"I am the Tea Princess," she informed me.
Well, I guess the boys weren't as impressed.
This look says it all!!
I think if I were to pick just one word for our last year it would be too hard, but 'survival' comes to mind. It was one of the hardest years of our families lives. "Dependence' is another as we had to really just keep leaning on the Lord for strength and peace and He really came through for us there. I don't know how people get through these major events without Him. "Thankful' for our son's life....our family and receiving so many blessings through it all.
NEW YEAR'S JOURNEY
- get with God and pray for my husband, kids and others daily, continued spiritual growth
- get the home super, mega organized
- recommit to eating healthy, life sustaining, cancer healing, weight losing foods
- work on and enjoy girly girl project with my damsel all year long and more
- drink green tea often
- get back to exersizing routinely like I used to (and better yet)
- eat these highly nutrient dense foods in our regular food rotation often (salmon~ almonds~blueberries~avacodos)
I didn't really want to get too detailed here. I am also going to start Wordless Weds just to have a fun, quiet way to showcase a favorite unique photo. I have a few other ideas/ plans but I am just going to have fun and PERSEVERE!! and maybe while I'm at it i won't be quite so behind on everything....:)
Monday, January 5, 2009
Sunday, January 4, 2009
MAGNANIM'ITY, n. [L. magnanimitas; magnus, great, and animus, mind.] Greatness of mind; that elevation or dignity of soul, which encounters danger and trouble with tranquillity and firmness, which raises the possessor above revenge, and makes him delight in acts of benevolence, which makes him disdain injustice and meanness, and prompts him to sacrifice personal ease, interest and safety for the accomplishment of useful and noble objects.