Magnanimously homeschooling, worshiping, creating.......

Join us on a journey of faith, healing, learning to live with part of our hearts missing, and recovery, as our family rebuilds our lives, after our son's long battle with cancer....and his eventual rise on eagle's wings into Heaven...victory is his...he is serving the King!!!

Sunday, June 26, 2011

beautiful sunny sunday

The sun is shining today, with a lovely breeze. I alternate between much needed deep cleaning inside and sitting and reading outside on my modest porch and of coarse, cooking food for 'bottomless pit boy'. :) He is off with dad, at the moment, ordering our new dishwasher which we are in desperate need of. It has been far too long of the old one not quite working right.
The list of things is long. My thoughts wander easily. Priorities are just...different. I am getting ready for the school year. Planning what to do with B until the transplant, during the transplant and after the transplant. Planning what to do with the two littles. Torn between what I CAN do, what I LONGto do, what I WISH I could do and what I SHOULD do...in other words...what the Lord LEADS me to do.
The garden needs weeding. I may get out there. The ratio of weeds to veggies is detestable. I will not give up on my 2 spinach plants, 3 pole beans, one watermelon seeding, many reseeded tomato plants and the turnips and arugula I threw in to get rid of the seeds and feed the hamsters a treat!!
Oh, I think I have one broccoli that survived. woot woot.
B's head is large but he is almost done and is in good spirits. I am so proud of him. He is some amazing kid. He told my mom the other day that he may wish he had lost a limb than have cancer. Ugh.
Be healed Braveheart, in Jesus name!!

Thursday, June 23, 2011

raising dragons

Braveheart is getting quite swollen in his face and bloated from the meds. He only has less than a week to take that, we are glad to report. Tuesday I took the 2 littles and their friends to the discount pool night and let them swim. B got his much awaited date night with dad. They went pee wee golfing. B reported later that they had a really good time. Last night we watched HOW TO TRAIN YOU DRAGON together. Me and the man have never seen it yet. It was so good!
This morning B was up reading a great book. RAISING DRAGONS BY BRYAN DAVIS. He is a Christian Fiction writer. Dylan enjoyed that series when he was young and now Damsel picked it up at the library and can't put it down easily. So, I was pleasantly surprised that B was farther along than she. We highly recommend that series. This series is listed as 9-12 years. He has other series that are YA.

We go for more chemo tomorrow. Prayers are welcome. The days are surreal here, waiting and enjoying each other. Planning for what is coming. God has given great peace. B is ready this time around. I still wish that this wasn't what must be done. Either way I am believing that God will do a great healing testimony through this. I am at peace. We just wait, believe and stand in faith and see God work. It is odd how calm and normal things are around here. We have kept all the summer activities to a minimum as well. It's almost like nothing is happening in a weird kind of way.

Well, hug your kidlets and I will be back to muse about my days getting ready for transplant...

Sunday, June 19, 2011

braveheart and father's day

I can't believe how many things Braveheart is planning. He had a full weekend between naps of museums, walks by the river, airshow and shopping to name the major events this weekend. He really doesn't have an immune system though, so he has a mask to take along and we have some tricks for knowing how far he can go and what he can do. He was denied a few things. It was a good Father's Day!

Saturday, June 18, 2011

scout bonfire complete

I have never seen Braveheart do so many things while on more than a maintenance chemo before. I am astounded! He loves making lots of plans to go places and food is always on the agenda with his food cravings from the medicine. Last night the scouts were over for a bonfire. We had beautiful weather all week up until this day. Then the rain was supposed to come and the Lord held it off the whole night. B had to wear a mask due to his counts being so low. If he were to get a fungus from the wood it could be deadly for him. We had such a great night. Blessings.

Friday, June 17, 2011

in the night

I love those moments when a child awakes in the night and sits by your side. I love to rub his back. Then he falls sideways down next to you and fits perfectly nested there. He tells of signs of feeling better and his oh so soft thinning hair is the best thing I have ever felt beneath my light fingers as the moon is shining full into the room and the breeze from the fan makes for a perfect night. Pleasant sleeping sounds from my honey on my left complete the moment. Thank you Lord. Thank you in the night.

Sunday, June 12, 2011

waiting for church

Here I sit, ready to go to church and now B is tired and needs a snooze. He's been doing very well again since starting chemo in the hospital last week. We have had to concede to doing this bone marrow transplant, but we feel he is more ready now. We are determined to beat the odds and prognosis. We are just being a family as we count down the time between now and the transplant. It's so weird. I can't describe the feeling of what we are preparing for. Believing that things will go well but knowing what 'could' happen. Who would want this for their child? I guess God didn't 'want' this for His child, but he gladly did it for our sakes. By His stripes ye are healed!!! There are so many things going through my mind. In the end, I can't do this but He can. Pray with us...CANCER..YOU ARE DEAD IN B'S BODY..DEAD..YOU CANNOT HAVE MY SON....MELT AWAY...FOREVER...NO POISON SHALL TOUCH HIM (thanks to your prayers too) Pray for the donor to be ready and able quickly.

Sunday, June 5, 2011

we will not be moved....

here we are at the hosptial....so much to say and yet so little to tell.... we had been on a crazy journey fighting to save our child's life from this aweful disease known as cancer...i hate that word...i hate what it does to us and our family and yet i do really see blessings..i see how god works and how he leads and plans and we have gone on what we thought was a journey he orchestrated and yet here we are back to bone marrow transplant again...i am amazed how we came to be in the hospital and all that god has done so far and how he is getting all the glory people...all of it and HE IS A GOD OF IMPOSSIBILITIES!!!

this is what we have to do now...i am not afraid any more and i know we have done what we were told and all we have done will lead to what b will have needed..

the people here are so good and kind and helpful and ready to regear for this dreaded transplant...the one with the bad odds....
but i will not back down...we will not be moved.....like the song says...

My brokenness helped me to see
It’s grace I’m standing on

Chorus
I will stumble I will fall down
But I will not be moved
I will make mistakes I will face heartache
But I will not be moved
On Christ the Solid Rock I stand
All other ground is sinking sand
I will not be moved

And the chaos in my life
Has been a badge I’ve worn
Though I have been torn
I will not be moved





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Why MAGNANIMOUS?

Noah Webster's 1828 Dictionary of the American Language defines Magnanimity as such:
MAGNANIM'ITY, n. [L. magnanimitas; magnus, great, and animus, mind.] Greatness of mind; that elevation or dignity of soul, which encounters danger and trouble with tranquillity and firmness, which raises the possessor above revenge, and makes him delight in acts of benevolence, which makes him disdain injustice and meanness, and prompts him to sacrifice personal ease, interest and safety for the accomplishment of useful and noble objects.