relapse....again??? Really?

What the heck?? That was my first thought. Really, after all he's already been through?  Although this relapse is not what we hoped for our precious son, God has really opened and closed doors through all of this since we found out.  That has really helped us with our decision making related to what to do for him, when there is little choices for this type of relapse with his type of cancer.  Wow, that is hard to take, couple that with most everything being out due to his kidney disease, but oddly, this has helped us in some ways and we feel God telling us what to do through this off and on.
So, about a month ago, our son was really getting his counts back, got his mask off, was starting school, feeling better than ever..FINALLY!! and then, wammo...RELAPSE..what a shock..a sad shock..

We haven't said much, needing to pray and absorb.  We were coming into clinic to get IVIG and figure out what we were going to do when more doors were closed or opened as we have prayed, one being that he came down with C-diff infection again which snuck up on us and made him very sick, so we had to be admitted for that, then the blast (cancer in the bone marrow) started spilling out into his blood, which was a progression marker that we needed to get moving if we wanted to do something.  We could stop there and things would be over soon, but Braveheart is well otherwise and we all decided after a big church/ community prayer session, to go forward with a kidney friendly plan that was presented.

 God told us before the diagnoses to 'stand our ground', He sent us a message and we are standing our ground, hoping in Him, praying, trusting, believing, warring...

Chemo plan has started, CMVviral infection has popped up, but he is hanging in there...blasts are gone when they don't usually expect that with this type of relapse.  We are so grateful.

more blood and platelets

We will go in tomorrow for red cells and platelets. They are still trying to figure out the plan for sure so I have no idea if we are being admitted or not at this point. B felt much better Monday after a rough weekend coming off the prednisone and all his counts dropping etc...
We are trying to build him up so he can handle all the chemo. His kidney test is all better now that the prednisone is out. So glad to see that.
Just sitting back waiting on the Lord as He directs everything. There are so many weird feelings and yet so much peace at the same time.
Life goes on as usual though around me. Cars go by, people stay busy, babies are born, kids still need their mamas and papas. Meanwhile, there is this annoying cell that keeps invading. But God is bigger than that as we keep believing there is complete healing.

"We just have to get this last thing mom."

Love that boy....

welcome home!!

We're back! It has been a very intense last few weeks, so much so that I cannot even talk or write about it. Have you ever had something happen in your life that you are in that state of high need of prayer and fellowship with the Lord?
We are home safe and snug as a bug. Braveheart is feeling well now. God is healing and answering prayers and teaching things over and over. You know...He is so much more awesome and powerful than I had ever been raised over these years to believe? He still moves, blesses, heals and lives for real!
Anyway, if I get time, I would like to figure out how to get photos back on here when I run out of space. I know there is a way. If you know, please help clue me in.
Blessings to you all and please keep praying from Mark 11:22, 23 and believe healing for our boy and so many other precious little children who are battling this disease.

it's saturday in the hospital...

day 4 chemo is complete. i can feel all the prayers as people lift us up in His name!!! today was a very good day. i was able to feel the arms of my strong husband around me. i feel stronger, like i can do this with His help...i may be crying tomorrow, but for today i feel peace that flows like a river....

we had a good day..a day that much encouragement was felt. it was almost like nothing bad was going to happen...it was hard to watch the lumbar puncture when they couldn't get in right away like they always usually can..i have an 'extra empathy' gene as it is...now it is late at night and the chemo is going. he finally falls asleep. he's not feeling well. i see the toxic drugs, three of them dripping into his veins. i know they are saving his life and yet causing so much damage..my heart aches for what's ahead..i don't want his head to feel hot and full as the liquid coarses through his blood attacking indiscriminately, slicing, steaming ahead..i will go to sleep now so i can wake him up every two hours so his kidneys stay clear...i will pray that there will be no vomiting and i will thank the Lord for His healing hand..

couldn't sleep last night...i was so tired that i did get good rest considering where i am but then at 4 am, there i was just thinking..thinking...i am not proud of some of the things i think about. we had a good day yesterday, the kind of day where you could almost forget the agony that's ahead. I am still trying to wrap my brain around it all.