scout bonfire complete

I have never seen Braveheart do so many things while on more than a maintenance chemo before. I am astounded! He loves making lots of plans to go places and food is always on the agenda with his food cravings from the medicine. Last night the scouts were over for a bonfire. We had beautiful weather all week up until this day. Then the rain was supposed to come and the Lord held it off the whole night. B had to wear a mask due to his counts being so low. If he were to get a fungus from the wood it could be deadly for him. We had such a great night. Blessings.

in the night

I love those moments when a child awakes in the night and sits by your side. I love to rub his back. Then he falls sideways down next to you and fits perfectly nested there. He tells of signs of feeling better and his oh so soft thinning hair is the best thing I have ever felt beneath my light fingers as the moon is shining full into the room and the breeze from the fan makes for a perfect night. Pleasant sleeping sounds from my honey on my left complete the moment. Thank you Lord. Thank you in the night.

waiting for church

Here I sit, ready to go to church and now B is tired and needs a snooze. He's been doing very well again since starting chemo in the hospital last week. We have had to concede to doing this bone marrow transplant, but we feel he is more ready now. We are determined to beat the odds and prognosis. We are just being a family as we count down the time between now and the transplant. It's so weird. I can't describe the feeling of what we are preparing for. Believing that things will go well but knowing what 'could' happen. Who would want this for their child? I guess God didn't 'want' this for His child, but he gladly did it for our sakes. By His stripes ye are healed!!! There are so many things going through my mind. In the end, I can't do this but He can. Pray with us...CANCER..YOU ARE DEAD IN B'S BODY..DEAD..YOU CANNOT HAVE MY SON....MELT AWAY...FOREVER...NO POISON SHALL TOUCH HIM (thanks to your prayers too) Pray for the donor to be ready and able quickly.

we will not be moved....

here we are at the hosptial....so much to say and yet so little to tell.... we had been on a crazy journey fighting to save our child's life from this aweful disease known as cancer...i hate that word...i hate what it does to us and our family and yet i do really see blessings..i see how god works and how he leads and plans and we have gone on what we thought was a journey he orchestrated and yet here we are back to bone marrow transplant again...i am amazed how we came to be in the hospital and all that god has done so far and how he is getting all the glory people...all of it and HE IS A GOD OF IMPOSSIBILITIES!!!

this is what we have to do now...i am not afraid any more and i know we have done what we were told and all we have done will lead to what b will have needed..

the people here are so good and kind and helpful and ready to regear for this dreaded transplant...the one with the bad odds....

but i will not back down...we will not be moved.....like the song says...

My brokenness helped me to see
It’s grace I’m standing on

Chorus
I will stumble I will fall down
But I will not be moved
I will make mistakes I will face heartache
But I will not be moved
On Christ the Solid Rock I stand
All other ground is sinking sand
I will not be moved

And the chaos in my life
Has been a badge I’ve worn
Though I have been torn
I will not be moved

Happy Birthday Braveheart and waiting...

I still haven't figured out what to do with this picture problem and none of you are telling me so...I am going to try to print some pics from Picasa and delete them and see if that works.
We are just waiting and standing in faith with God for healing of our boy. He has led us to some treatments that are not the usual coarse, so we can avoid this very dangerous BMT. (bone marrow transplant) Braveheart is doing great. We are believing God for his healing and take every day one moment at at a time. Never have things been so intense around here as we take our stand. We are so thankful for your prayers.
Praise Jesus!!
I actually forgot to post that it was B's birthday #14 back on the 9th and how did this photo load?? So blessed to have another birthday!

healer

welcome home!!

We're back! It has been a very intense last few weeks, so much so that I cannot even talk or write about it. Have you ever had something happen in your life that you are in that state of high need of prayer and fellowship with the Lord?
We are home safe and snug as a bug. Braveheart is feeling well now. God is healing and answering prayers and teaching things over and over. You know...He is so much more awesome and powerful than I had ever been raised over these years to believe? He still moves, blesses, heals and lives for real!
Anyway, if I get time, I would like to figure out how to get photos back on here when I run out of space. I know there is a way. If you know, please help clue me in.
Blessings to you all and please keep praying from Mark 11:22, 23 and believe healing for our boy and so many other precious little children who are battling this disease.