Magnanimously homeschooling, worshiping, creating.......

Join us on a journey of faith, healing, learning to live with part of our hearts missing, and recovery, as our family rebuilds our lives, after our son's long battle with cancer....and his eventual rise on eagle's wings into Heaven...victory is his...he is serving the King!!!

Saturday, July 16, 2011

cure search is the children's cancer research organization to support

This is taken from a fellow cancer warrior's carepage.


Swimmers from the North Shore Summer Swim League and surrounding area pool and beach clubs are hosting the “Swimmers Go Gold to Cure Kids Cancer” campaign to help raise awareness and funding for childhood cancer research. Their efforts will benefit the Make Some Noise: Cure Kids Cancer Foundation, a pediatric cancer research foundation started by a child with cancer. Gold is the awareness color for childhood cancer, and teams are asking their swimmers to wear gold bathing caps at home meets. They hope to create a
“pool of gold” to help raise awareness for childhood cancers.
In May of 2009, Lilly Daneman, of Little Silver was diagnosed with a pediatric bone cancer called Ewing’s Sarcoma, she was nine years old. Lilly attended Seashore Day Camp and School and was a member of the Monmouth Barracuda Swim Team. For treatment, she spent over 100 days in the hospital, received 14 rounds of chemotherapy and limb salvage surgery to replace her femur with a titanium rod. Her schoolmate, Jack McLoone, who was twelve at the time, was also battling a form of childhood Leukemia. Lilly and Jack are now both in remission. Lilly swims and enjoys the ocean after major rehabilitation, and is competing once again, to a limited degree, on the summer Water’s Edge Beach Club Swim Team. Jack, who suffers severe nerve damage from his chemotherapy, is also enjoying life playing his beloved sport of baseball.

During Lilly’s surgery at Children’s Hospital of Philadelphia, in August 2009, she met 11-year-old Malcolm Sutherland- Foggio, of Morris County, who had the same type of pediatric cancer. He wanted to form a foundation to make some noise about children’s cancer and raise research funding on a national level. Lilly and Malcolm became fast friends. Malcolm incorporated Make Some Noise in September 2009, at which point, Lilly’s mother, Gerri Daneman, joined the Board of Trustees to help the foundation raise funds for Pediatric Cancer Research. In September 2010, with the help of the McLoone family, Make Some Noise hosted “Rockin’ the Boardwalk” and a sand castle building contest at McLoone’s Pier House in Pier Village. The dinner auction was dedicated to the memory of Mark Levin, age 9, who had recently passed from childhood cancer, and honored nearly a dozen Monmouth County childhood cancer warriors. This September, (which is pediatric cancer awareness month), the foundation plans to make a little more noise in Monmouth County, as so many children of Monmouth County are battling childhood cancers.
In January of 2011, another young swimmer from the Monmouth Barracudas, Rachel Kovach, was also diagnosed with Ewing’s Sarcoma. Rachel’s coach, Paul Buerck, was devastated to learn the news. Coach Paul has had two swimmers diagnosed within a year and a half of each other, and is also the teacher of two other young Monmouth County girls currently battling relapsed Leukemia. Pediatric cancer is not as rare as one would think, in fact 1 in every 320 children are diagnosed with cancer. Coach Paul and the Monmouth Barracudas hosted “Race for Rachel” in February, 2011, and Rachel and her family designated Make Some Noise as the beneficiary of the very successful event. But knowing how great the research funding needs are, Coach Paul felt he needed to do more to make some noise about childhood cancer.

This summer, Coach Paul Buerck and the Monmouth Barracuda Swim team, along with Coach Robin Levin from Seashore Day Camp have rallied the North Swim League and other surrounding area swim teams to Make Some Noise to help cure kids’ cancer. Swim teams are being asked to “Go Gold,” have their swimmers purchase gold Make Some Noise swim caps for $10.00 and wear them at one of their home meets. Some of the teams are making plans to have other types of fundraising functions at these meets to help raise more funding for critically needed research. Teams with upcoming Gold meets are Chapel; Little Monmouth; Monmouth Beach Bath & Tennis; Promenade; Sands; Seabright Bath & Tennis; Seashore Day Camp and School; Ship Ahoy; Surfrider; and Waters Edge. Make Some Noise Chairman, Julie Sutherland, Malcolm’s mother, and herself a former competitive swimmer, is delighted by the tremendous support.

A child’s odds of being diagnosed are 1 in 320—three times their likelihood of being admitted into an Ivy League College. Many treatments for childhood cancers are 30 years old, and cure research is slowed compared to adult cancer research due to lack of funding. Childhood cancer as a whole receives only 3% of the research funding pie, and that 3% needs to be divided among more than a dozen different pediatric cancers. Image how underfunded that makes any one of these childhood cancers. Some cancers, like Acute Myeloid Leukemia and most of the solid tumors, like brain and bone cancers still have poor survival rates. Those who survive childhood cancers face serious long term health consequences from the treatments they received as growing children. Chemo therapy and radiation are extremely harsh on developing organs.

The Make Some Noise: Cure Kids Cancer Foundation is head-quartered in Morris County, and occupies office space courtesy of the Mack-Cali Corporation’s generous subsidizing. The foundation raises critically needed research funds for all childhood cancers and distributes them to pediatric cancer research facilities across the country… choosing cancer specific research to fund to be sure the money is well directed. Their mission is to make some noise on a national level as quickly as possible to help speed up the research funding. In the 21 months since incorporation, Make Some Noise has raised over half a million dollars, but they are just getting started. We lose as many children to cancer each year as the number of people we lost on 911. If cures remain another 10 years off, we will lose another 20-30,000 children to cancer in this country alone, one million world-wide.
The Make Some Noise Foundation is extremely grateful to the swim teams, their coaches, families, and supporters for their heroic efforts to help make some noise about childhood cancer, and is inspired to help make this a national initiative. If your team wishes to join the campaign, contact Gerri Daneman, for more information.
We will be going to high-schools,colleges and competitions across the country.

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Noah Webster's 1828 Dictionary of the American Language defines Magnanimity as such:
MAGNANIM'ITY, n. [L. magnanimitas; magnus, great, and animus, mind.] Greatness of mind; that elevation or dignity of soul, which encounters danger and trouble with tranquillity and firmness, which raises the possessor above revenge, and makes him delight in acts of benevolence, which makes him disdain injustice and meanness, and prompts him to sacrifice personal ease, interest and safety for the accomplishment of useful and noble objects.